What Charley Trust Fund does

What we do

When a child is diagnosed with a life limiting illness or a complex disability, their families can face much turmoil. At a time when they desperately want to focus on the needs of their child, many parents are faced with severe financial hardship as they reduce their working hours to care for their child. A desperate situation can quickly become unbearable.

We are a grant making trust providing funds for equipment and services that are not always available on the NHS. From medical/educational/recreational equipment, to travel and parking costs for the many hospital visits that families have to make, home comforts for when a child is recovering at home, and sensory toys and equipment for children with complex disabilities, and much more. We try to help with things that enhance the child’s life and/or makes life easier for the whole family.

We try to provide sick children with a reason to smile and memories for their parents to cherish – such as short breaks away, days out or treats to help them through desperate times.

We aim to:

  • Enhance the lives of sick children
  • Have a positive impact on the whole family
  • Give families precious time together
  • Make life a little bit easier
  • Ease financial burdens
  • Support Ward Playrooms